Here's a peek into what it is like living with Spasmodic Dysphonia.
Mr. Macchiato often has to play secretary and make calls for me, as do the kids on occasion. He is very busy at work and it can be frustrating and end up in many calls back and forth between me and whatever office he's making appointments for.
Well, Benny started smelling bad and was always chomping on his rear. We decided he needed to see the vet. Our vet is close to the house so I drove over there with a note telling them what was going on and made an appointment for later in the day. His glands back there are infected so he's on antibiotics and sadly sporting a cone.
When I got back in my car I decided to drive to my doctor's office which is farther away to make an appointment for myself rather than bother Mr. Macchiato with the task. I've got some weird problem where I retain a lot of water and have to take medication for it. I ended up at the Urgent Care a couple weeks ago because I ran out and I gained over ten pounds in a matter of hours. I wasn't able to get in with my doctor but they called in another perscription for me... with NO REFILLS. So... I decided to make an appointment so I can get that taken care of and avoid another trip to the Urgent Care or ER.
I handed the gal at the front desk a note stating basically the above. My doctor happens to be on vacation so I agreed to see one of the other doctors. She filled out a card for me with today's date and 3:45 pm. I left the office feeling good about taking care of something by myself.
I was ironing some pants for myself when the phone rang at 3:05 pm. It was my doctor's office wondering where I was.
Me: My appointment isn't until 3:45 pm.
Gal: I can't understand you. You need to speak up.
Me: My. appointment. is. not. until. 3:45 pm.
Gal: No, your appointment was for 3:00 pm.
Me: I came into the office yesterday to make the appointment and the card says 3:45 pm.
Gal: I did not understand a word you said.
Me: The. card. says. 3:45 pm.
Gal: When did you make the appointment?
Me: Yesterday.
Gal: Yesterday?
Me: Yes.
Gal: Who did you talk to?
Me: The person at the front desk.
Gal: Who was it?
Me: I don't know.
Gal: Hold on.
Gal: Did you call?
Me: No, I came in. No one understands me on the phone.
Gal: What? I didn't get that last part.
Me: Sigh... I. came. in.
So y'all know, if you miss an appointment without calling, they charge you.
Me: I'm not far, can I still come in?
Gal: No, you are too late. You need to reschedule. UGH. Hold on.
Gal: Hurry up and get in here, we'll squeeze you in.
Me: Well... does that mean it will take longer?
Gal: Whu? Longer? Yes. (totally said in an
are you stupid? tone)
Me: My son needs to be somewhere at 5:30 pm. I'd better reschedule.
Gal: Sigh... you are going to have to wait until Monday then.
Me: Fine.
Believe me, I will be taking my little card in with me!!! And... AND I went and counted my pills... AND I DON'T HAVE ENOUGH TO GET ME TO MONDAY!!!!!
I could seriously cry.
I. AM. FRUSTRATED. BEYOND. BELIEF.